Foundation Towards a Cure
The foundation Towards a Cure was founded to support scientific research into Amyotrophic Lateral Sclerosis (ALS). This is achieved through fundraising and by making funds and resources available to scientific research activities into ALS.
Vision
A world without ALS
Mission
To (financially) promote activities and research into finding a cure for ALS
Ambition
To raise €40 million in 5 years to find a drug for patients suffering from ALS
Who are Foundation Towards a Cure?
Towards a Cure is a private non for-profit foundation. The purpose of the foundation is to support and intend to support, financially or otherwise, the activities and scientific research into ALS and furthermore. The foundation does not aim to make a profit. Towards a Cure tries to achieve this goal by, among other things, the money from funds and other resources and making these funds and resources available (e.g. by means of donations or by investing capital).
Click on the links to read more about the policy (updated feb 2024) and bylaws (link) of Towards a Cure (2021).
Board of Directors
The board of Towards a Cure consists of 3 persons. Board meetings are at least held once every six months. The Board of Directors, members of the Executive Board or otherwise, will not be entitled to any remuneration or expenses from the Towards a Cure account. The directors should furthermore not dispose the assets of Towards a Cure as if they were their own assets.
Current members of the board are:
Professor Leonard van den Berg – President
Professor Orla Hardiman – Secretary
Professor Christopher McDermott – Treasurer
Financial accountability and annual reports
The reports of each year will be listed here. Financial overviews, balance and annual financial reports will be made available to the public within six months after the end of each calendar year and can be found here.
The following information is currently available:
• A financial annual reports (2021) (2022) (2023)
• A short, substantive annual report (2021&2022) (2023)
• Newsletters: No newsletters are published until now.
